Parenting is hard. Parenting teenagers even harder. This is no secret. You know what makes parenting an even harder job? Navigating the parenting of a special needs child on the autism spectrum.
I was out with some friends recently, and they always seem to believe that I have the answers or that I just don’t want to hold on as tight to my son. No, it isn’t that. It is more I want to allow myself to let go and allow my son to spread his wings. One said you are way better at letting go then I am. I don’t believe I am good at letting go, but there are a few things I do know.
The night before the EEG was such a long night. We were given directions that our son could only sleep three to four hours before showing up for the test the next morning. Those doctors have no idea what they are asking of us keeping up most the night.
Yaakov, my eleven year old who has Aspergers, was invited over to a friend’s house. He has known this child for a couple of years, but today was their first play date. I was so excited for him to have yet another experience of friendship and be able to experience being at a friend’s house.
We all have to balance our lives it doesn’t matter if we have kids with special needs or not. Everyone has to take time to balance their daily life!
The fear comes in when you aren’t close to your doctor’s and what would happen if he hurts himself in a meltdown and you don’t have the doctor’s you have been dealing with for years. How do you explain to a doctor who has never seen your child’s outbursts?
Five days without the kids! I finally decided to practice what I preach and left the boys for five days while my husband and I got away.
My panic was starting to build up as I watched him struggle and I had to remind myself to stay calm. It took everything I had not to jump in there to remind myself the life guard is on his way and he doesn’t need a mother panicking jumping in to save her son. It could cause more damage than help.
Sitting in the waiting room, waiting again, waiting for them to finish another MRI. It has been a couple of years since Yaakov, our 11 year old son, has had his last MRI. At one time in my life, I would have wished one of those tests would have showed something wrong. Yet, every time I think about that guilt fills me up. But, the truth is if one of those tests showed something it would mean they would know what is wrong and we could fix the problem.
There are so many helpful tips out there for how to read an IEP, prepare for an IEP, and so on, but, nothing on how to control your anxiety.