Working with families at All In Need, Family Support (AiN) has taught me that parents and caregivers are strong. Each child that comes into AiN worms their way into all the volunteers’ hearts, and as volunteers we hear the parents’ stories of their child’s success and struggles.
As the Executive Director of AiN, I often times cry after hanging up with a parent hearing how their child is taking a turn for the worse or their child’s behavior is out of control. I hear desperation in the parent’s voice as they are struggling to support their child’s needs. Having a child on the spectrum, often times, I can understand their feelings and can tell parents it will get better. But, sometimes I cannot relate to what the parents are saying. All I can do is listen and try to hold it together while parents give me the latest updates on their children. Then I hang up and cry. I cannot even imagine your child having additional medical issues on top of the daily fight of Autism. I cannot imagine the fight of a wheelchair, because your child is too tired to stay on her feet. I cannot imagine hearing the words “your child will not make it to adulthood”. So, this parent tries to relate to what parents must be feeling, but instead I crawl under the covers and cry for the families who are hurting. Yet, I see these parents go on and advocate for their children. Knowing they are exhausted, but amazingly strong. Yet, as a spectator in their lives, I get to learn what love is and what dedication and strength is. It is humbling that these families allow us at AiN to be part of such an intimate detail in their lives.
At AiN, we know we only can help carry their burdens, and we do that through offering respite care to the families. Their child has an opportunity to socialize with others and play games. We also offer three special events a year. This gives them the opportunity to participate in mainstream events and parents to network with one another.
Lastly, we offer the Angel Fund. We choose one family who has attend at least one Revive event in the last year. The goal of this fund is to help the family who is in need of additional support due to unforeseen circumstance. We are proud that we were able to provide $250 to the Cook Family to help cover medical expense for their son who suffered a stroke early in 2015.
Photos taken by Karen De Jager: Spectrum Photography